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Fox Valley Memory Project
1800 Appleton Rd
Menasha, WI 54952
Fox Valley Memory Project collaborates with other organizations to build communities that welcome, include, and support persons with dementia, their care partners and their families.
Fox Valley Memory Project works to create dementia-friendly communities by reducing the fear and isolation associated with dementia and connecting families with resources to live well.
Be creative: Provide access and engagement with the arts
Be friendly: Promote friendship and social activities
Be accommodating: Include all stages and types of dementia
Be respectful: Provide stigma free, hospitable environments
Be advocates: Offer leadership, education, and support through innovative solutions
Be supportive: Support people with dementia and their families, along with the businesses that serve them, medical professionals who care for them, and workplaces that employ them
Be inclusive: Include people with dementia and/or care partners in planning, promoting, and conducting programs and activities
Betty Lefebvre-Hill
Former Fox Valley Memory Project Executive Director
Susan McFadden, PhD
Fox Valley Memory Project Co-Founder
Dr. John Barkmeier
Fox Valley Memory Project Board Member/Past President
Susan McFadden, PhD
Fox Valley Memory Project Co-Founder
The Fox Valley Memory Project began in early 2011 when the Basic Needs Giving Partnership of the Community Foundation for the Fox Valley Region encouraged local advocates to create collaborative programs addressing the needs of older adults. In response, four individuals—Susan McFadden, PhD; Beth Belmore, then an executive with Lutheran Social Services; Margie Rankin, the retired administrator of Park View, Winnebago County's Skilled Nursing Facility; and Dr. Lee Vogel, a geriatrician with the UW Fox Valley Family Medicine Residency Program—came together to form an aging issues task force.
The task force determined that people living with dementia and their care partners lacked opportunities for social interaction and engagement in the community. They also identified the need for prompt, thorough, early diagnoses for people worried about memory loss and other cognitive challenges as well as the need for community education about dementia.
A planning grant funded by the Basic Needs Giving Partnership and the Helen Bader Foundation (now Bader Philanthropies) supported a community breakfast and think tank in October, 2011. Concerned individuals and professionals participated in a discussion to identify areas of impact most needed to improve the quality of life for people affected by dementia. Guided by this input, representatives from various agencies and organizations formed a Steering Committee to give momentum and vision to the mission to address these areas of need.
With major multi-year grants from the Basic Needs Giving Partnership and the Helen Bader Foundation, secured in spring 2012, along with support from the Appleton Downtown Rotary Club and several donor-advised funds at the Community Foundation for the Fox Valley Region, the Steering Committee hired staff, engaged volunteers, raised public awareness of its goals, and set out to establish a dementia-friendly community that cares for, engages with, respects, and supports individuals experiencing dementia and their loved ones.
In September 2012, Betty Lefebvre-Hill was appointed as the first part-time Program Director, and by November, memory cafés were launched. The first memory café was held at Atlas Waterfront Café, followed by another at the Thompson Community Center. Outreach efforts, including presentations to local community groups and articles in the Appleton Post Crescent, helped spread awareness of the initiative. While memory cafés in other communities often start slowly with only a few attendees, the Fox Valley region responded quickly and enthusiastically, embracing the opportunities for social interaction provided by these cafés.
The Memory Loss Resource Center was established in 2013, followed by the launch of the Memory Assessment Center at MOSAIC Family Health. The goal was to ensure that various support programs, such as the cafés and resource center, were in place to provide hope and reassurance to individuals receiving a dementia diagnosis, demonstrating that the community cares and is ready to support them.
FVMP had operated under Lutheran Social Services of Wisconsin and Upper Michigan for about seven years. In April 2018, following a strategic planning process that identified opportunities for growth, FVMP hired its first full-time Executive Director. By August 2018, the organization achieved 501(c)(3) non-profit status. Shortly thereafter, FVMP relocated its offices to the campus of Goodwill Industries of North Central Wisconsin, where it continues to operate today.
Mike Rohrkaste became Executive Director of the Fox Valley Memory Project in 2019, bringing extensive leadership experience from both the private sector and public service. As a Wisconsin State Assembly member, he chaired the Speaker’s Task Force on Alzheimer’s and Dementia, spearheading healthcare reforms and workforce development initiatives. He also served as Vice Chair of the Assembly Committee on Health, helped pass a bipartisan 10-bill Alzheimer’s and Dementia package, and contributed to the 2019-2024 State Dementia Strategic Plan as a steering team member.
The Fox Valley Memory Project was awarded a three-year cooperative agreement of $997,418 from the Administration for Community Living (ACL) in July of 2021. The funding provided support for FVMP's Alzheimer's Disease Program Initiative, allowing the development and implementation of new support services focusing on:
The first phase of the grant involved a planning process between FVMP, ACL, and the National Alzheimer's and Dementia Resource Center to ensure successful implementation and long-term sustainability of the new services.
In 2023, FVMP introduced the Mindworks program, a facilitated three-hour class for individuals with early to mid-stage dementia, providing therapeutic recreation and respite for caregivers.
The Fox Valley Memory Project continues to grow, providing programs and support to communities across Winnebago, Waupaca, Calumet, and Outagamie Counties. Efforts are continually being expanded to ensure individuals with dementia feel valued, supported, and included within the community.
With a proud history of achievements, Fox Valley Memory Project remains dedicated to forging new partnerships, securing funding, and engaging volunteers to foster a more inclusive and respectful culture for those living with dementia in the Fox Valley region and surrounding communities.
Fox Valley Memory Project works to create dementia-friendly communities where the fear and isolation often associated with dementia are eased by connecting people with one another and with resources to live well with dementia.
Registered 501(c)(3). EIN: 82-3556549
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1800 Appleton Rd
Menasha, WI 54952
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